The boy needs urgent surgery of course and doctors are urging the parents to go for private treatment. His his parents Priyanka, 24, and Nirbhay Pal, 31, earn less than £3 a day so there’s no chance of them affording it. The father admitted that they struggled to afford two square meals on a daily basis.
They’re hoping the government will step in and foot the bill, but if they haven’t already stepped in it looks unlikely that they will. Because the condition is so rare even surgery is no sure fire solution. The rarity of the disorder means that you are unlikely to find a surgeon with any experience. Also, ectopis cordia can cause the heart (or other organs) to grow anywhere on the trunk of the body, so no two cases are the same.
I can’t even imagine how horrible it would be to watch the inevitable death of your child, praying for money you knew would never come.
I find this kind of medical anomaly pretty fascinating, so I read a bit more into it. I found a video of another case which shows the beating heart of the afflicted child. Again, probably NSFW…
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